Tuberous Sclerosis Complex (TSC) affects more than 2000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease.
TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure for TSC, but with appropriate support most people with TSC can live fulfilling lives.
Tuberous Sclerosis Australia (TSA) empowers people affected by TSC through access to the best treatment options, up to date information and support.
Today the Federal Minister for Health, the Hon Peter Dutton, announced that the cost of Everolimus for Tuberous Sclerosis will be subsidised by the government through the pharmaceutical benefits scheme (PBS). This medicine is approved in Australia for the... Read More
The 2014 Annual General Meeting (AGM) of The Australasian Tuberous Sclerosis Society Inc will be held on August 17th at 12:30pm in Sydney. You can register to attend the AGM here. One of the items of business in this... Read More
A post by Clare Stuart I was fortunate to be funded through TSC International to attend the recent TSC World Conference held in the USA. I have returned from this trip with lots of great information, some strengthened relationships... Read More